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08/20/2006

Let the wild rumpus start!

There I was a few months ago, clicking obsessively through the stats pages for this site, carefully cataloguing who links to me so that I might send each writer a crisp, new $100 bill and a handwritten thank you note, and I happened across a link from Ayun Halliday.  Ayun is the creator of the zine The East Village Inky and author of several books, including Dirty Sugar Cookies and The Big Rumpus.  She's also the mother of two small children, and, because her link pointed to my page of advice for NICU parents, it was immediately obvious she and I had been around the same block.  (Her own good advice is featured here.)  I ordered The Big Rumpus, Ayun's chronicle of her early years of motherhood, immediately.

In a strange but compelling coincidence, the book arrived on the same day as Ayun's e-mail asking if I'd participate in her virtual book tour for its U.K. release (retitled Mama Lama Ding Dong but otherwise unchanged, "motherfucker"s faithfully unswapped for "Eh, wot?!  Tally ho, guv'nah!").  I don't usually participate in these because, egad, what modern mother has time to read when we're all so busy drinking?  But because Fate, costumed in one of her grubbier guises as the UPS delivery man, had decreed it, I told Ayun I'd love to.

Parthocup Remember how I said up there that Ayun and I had been around the same block?  Well, as I read The Big Rumpus, it quickly became clear that that was true, as far as it went, but that she's the breezy, funny, wisecracking woman ambling happily along the sunny side of the street, whereas I am the dirty guy crouching miserably on the corner holding out a tattered Partho-cup, shaking it feebly, asking for change, and then bellowing an outraged "BITCH!" after anyone who refused.

Whoa.  Sorry.  Maybe Ayun's colorful descriptions of Manhattan life were just a little too evocative.

Anyway, to abandon that poor slaughtered metaphor, what I mean is that while Ayun and I are both mothers, our experiences of parenthood are, so far, vastly, vastly different.  She stayed in the city to raise her children; Paul and I abandoned it before we even started trying to have one.  She conceived both her kids easily: "I had all the contraceptive luck with breastfeeding that I've had with my diaphragm."  Her birth stories are hilarious and touching.  And breastfeeding for her is a joy:

Shortly after moving to New York, I decided I'd better make a plan in case I got pushed in front of a subway train. [...]  I wondered what I'd say if I were pinned between the train and the platform with just minutes to live...I could instruct the gaping herd to bring me my baby.  "I want to feed her one last time..."  Someone would put Inky to my breast.  I would die happy.

Well, hell, I'd have people bring me Charlie, too.  But if it had been while we were still giving nursing a go, I'd have cradled him close to my breast, stroked his head, and said, "No, no, it's okay, baby!  No screaming!  Hey hey hey, shhhhhh!  Shhhhhh!  Aw, bunny, it's okay!  I'm not going to make you try this time."

Stepladder These differences aren't necessarily upsetting, because I try to be a hundred-flowers-bloomer, but some of them do seem exotic to me.  For me, much of The Big Rumpus read like a fascinating travelogue or perhaps an intriguing anthropological treatise — if anthropologists ever enjoy a rollicking laugh about head lice, that is.  It was absorbing.  It was thought-provoking.  A lot of it was really, really funny.  But to much of it, I couldn't really relate.  And a few parts of it, I admit, even sent my hackles soaring skyward.  And if you've ever tried to scrape a hackle off the ceiling, you can appreciate how long I spent swearing on the stepladder with the putty knife after reading this:

Some of my supporters would be horrified to learn that I breastfed Inky until she was two and a half, still sleep in the same bed as Milo and regard the highly popular Ferber technique of getting children to sleep through the night by leaving them to cry as close to sanctioned child abuse.  Not that I judge anyone who Ferberizes her child!  Oh no no no no no!  We all do what we have to in order to make it work.

Oh, my stars, no.  Not that we judge each other!  No no no no no.

But there are a few places I found common ground with Ayun.  The first came as I read the part of the book called "Neonatal Sweet Potato: Dispatches from the New World," specifically her stories of her daughter's stay in the NICU.  India — her zine's eponymous Inky — was born full-term but spent two weeks in the hospital after contracting a mysterious infection.

My baby's bassinet in the Neonatal Intensive Care Unit looks like one of the large plastic bins we used to store lettuce back when I was waiting tables at Dave's Italian Kitchen.  It is lined with half a dozen hospital-issue baby blankets, expertly folded to perform a variety of functions.  They anchor the crib sheets, warm the tiny occupant, and form a protective horseshoe around the eggshell head.  The burgundy and turquoise stripes that edge the white flannel make me think of Mother Teresa's order, nuns in homespun saris.  I steal one of the blankets to cuddle and cling to on the nights when I am in bed on the maternity ward and baby is in her salad bin one flight below.  When I'm not crying into it, I hide the blanket in my fake-wood nightstand.  I don't relish the idea of being busted, but I have reason to think I'll be treated with clemency if my theft is discovered.  All the other new mothers get to keep their babies.  Who would begrudge me a soft little blankie that smells like the dryer?

I hear you on the blanket, Ayun.  Stolen and brought home.  And although our reasons for being there were different, every NICU parent has this in common:

I remarked to the same nurse, "I can't complain.  I know there are other people here whose situations are much worse than mine..."

"Well," the nurse replied, "it's a place of broken dreams.  No matter what the situation is, it boils down to somebody's dream being shattered."

But Ayun and I were both lucky:

After she said that, I felt like I could relax.  Yeah, my dream was shattered but my baby is alive.  [...]  What are dreams?  They're plates you can afford to hurl against the wall as long as the important things escape unharmed.

And the important things have.  Ayun can stop you in her tracks with sudden blasts of perceptiveness and honesty.  "How does Inky drive me crazy?  Great leaping Jesus, how doesn't she drive me crazy?" she writes.

It's rooted in desire.  Her constantly voiced desire to purchase a "beauuuuuutiful dress" like the one she saw in the catalog at her grandmother's house.  My desire for my children to look like something other than the hemophiliac offspring of English royalty.  [...]  My desire for her to occupy herself quietly with a coloring book until it's time to go to bed early.  Her desire for me to color with her.  My desire not to do that.  She drives me crazy.

I drive her crazy, too.

And she didn't lose her sense of humor.

I don't want to be one of those mommies who snap at their children for doing it wrong; neither can i stand to see a big glob of glitter glue squirted where it doesn't belong.  Glitter glue should be distributed evenly, to form a pleasing shape.  Actually, glitter glue should not be distributed at all.  Please do not give glitter glue to people who have children, even if they are artsy.  If you have given glitter glue to Inky in the past, please refrain from doing so again.  It turns her mother into a bitch.

Maybe, but a funny bitch.  And that's ultimately what allowed me to get off the stepladder and move past the few parts of the book that made me uncomfortable to the parts I could truly enjoy.  That more than anything else is what my favorite mothers have in common, after all.  And although our experience of being parents is radically different in many ways, at bedrock I'm glad that she's here to speak for all of us: raising children, she says,

...is like getting off the graveyard shift at Burger King with fifteen minutes to make it to my second job in the coal mines.  Of course, once a week I am summoned from the mine shaft to accept the Nobel Prize, but goddamn it, I earn those.

SPECIAL BONUS AFTERTHOUGHTS!

Because Ayun's been so generous with her time as her virtual book tour moves around the Web, answering interview questions and sharing pictures, I thought I'd ask her for a picture of her daughter in her blanket to post alongside the ones I have of Charlie.  I did, and she responded promptly, sending two pictures of a brand-new sleeping Inky.

I loved the pictures.  I wasn't prepared, however, for how her accompanying note hit me:

"i sent 2 b/c the nicu picture looks so crazy alarming and I don't want to scare pregnant first timers."

My first reaction was a startled bark of laughter.  I mean, wow, my entire blog reads like it was designed to scare pregnant first-timers.  Not that most of you are pregnant first-timers — but just in case you are, do me one leeeetle favor: please skip all posts from March 2003 to, oh, about November 2005, okay?  Because if you don't, Jesus, are you in for a shock.

My second reaction, as I thought about it more, was a complicated kind of hurt.  I'd felt no such hesitation about posting our first pictures of Charlie (QuickTime, 316 KB)Why should I? I thought.  This is my truth, important for me to tell, and every bit as beautiful, in its own roundabout way, as "3 pushes, all natural, no tearing."  Should those of us whose truths are not so pretty think twice before the telling?

My next reaction was confusion.  The parts I liked best about Ayun's book were the funny, honest parts, the parts where she was, I felt, telling it like it is, dirty-fingered crazy-making motherhood.  So I was disappointed that she'd pull her punches here.

My next reaction — the hits just keep on coming — was to take a good long look at the picture itself.  It didn't alarm me, not in the slightest, but as I looked at it I had to be fair: I could see why it might be frightening to someone who hadn't seen worse.  It constitutes proof that bad things happen, suddenly and at random, that dreams, like the nurse said, get shattered.

But that didn't sit well with me.  Bad things do happen, whether we're looking or hiding our eyes.  And anyway, no matter how it looked at first, Ayun and Inky (and Charlie and I) aren't the scary stories.  We're the happy endings.  And isn't that a truth worth telling?  A lucky break worth celebrating?

I read The Big Rumpus cover to cover and found plenty worth considering, as I wrote above.   But a single line from Ayun's e-mail has made me think longer and harder than any of it.  I'd like to know how you handle this.  Are you careful with your unpretty truths?

Posted by Julie at 06:05 AM in I've learned a lot...but I'm not sure it's worth it. | Permalink

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Julie at A Little Pregnant just reviewed a new book that features (among many other stories) the details of the author's time in the NICU. Both Julie and Ayun stole at least one of those ubiqitous blankets (on display from [Read More]

Tracked on Aug 21, 2006 2:01:36 PM

Comments (106)

My care in the unpretty truths depends on the audience. It is strange that I censor myself more with people in real life - the people that I *could* take greater lengths to moderate the reaction to the unpretty truths. But the poor soul who happens to read something I've written previously gets no benefit of censorship.

Ironic that we have unpretty truths vs. pretty untruths.

Your picture of Charlie in the NICU with his blanket brings tears to my eyes every time I see it. It takes me right back to the time when I was overcome with the notion of potential. Potential for happiness and good fortune - a baby coming home - in full yin vs. yang with the notion that his potential would be lost to all.

And now that I see the video clip, I'm overcome with the fact that I see the reflection of his parent in the image more than I see him. It is powerful that the video captures both.

But my heart also soars when I learn about things in his world now - cake being all gone, et al.

For the Charlie and Inky that we have to behold, there are Ben and Hope that we miss each day.

The world should know about them all, no?

Posted by: Boulder at Aug 20, 2006 6:41:20 AM

When my son was 11 months old he had an EEG and we took a really cute picture of him hooked up to all the wires (stuck to the skin, non-invasive) - he was happy, and smiling, and this was our reality. He's had 4 more EEGs since then. Anyway, I got emails back telling me how awful I was to send that photo, girlfriends told me it was cruel and made them cry. And I just thought it was a cute pic of my gorgeous boy.

So, I am a lot more careful now. I don't know why I should be, it's truth and it's out there. But I guess when I sent the pic there was no choice to look or not, it was in the inbox with no warning, and perhaps some of the more sensitive souls would have chosen not to see that.

I, for one, love the photos of Charlie - and Inky. Why should you hide where they came from? And Tertia has a photo of Ben linked to her site. Oh what a beautiful, touching, magical photo of mother and son. I see it as an honour that she shared it with us.

Posted by: Jodie at Aug 20, 2006 7:21:28 AM

I do censor some sensitive information with blithely overconfident first timers, mostly I think because I don't want to sound like some neurotic Cassandra. Three of my children spent time in NICU, one of my nephews died the day he was born, I had two miscarriages, and my sister spent much time on 5 IVFs, so I don't take any pregnancy for granted. But so many women (and men) think it is all babydust and fairies, and that nothing can ever go wrong. I try not to be the voice of doom, but I do always think to myself, 'I hope you are lucky enough never to know how bloody ignorant and heedless you really are". I can't go to baby showers, and I tend not to fulsomely congratulate the 5-minutes pregnant. These are the scars one carries. I love your work, and that of many other linked bloogers, because you also know about the scars, and acknowledge them.

Posted by: Emma at Aug 20, 2006 7:30:38 AM

I love your truths! Every scary and beautiful one of them. I love your swooping highs and lows of trying to get pregnant and miscarrying, because they reminded me of how lucky I was to only have to go through 4 tries and one miscarriage to get here. I love all your stories from the NICU because it constantly reminds me of how freakin' lucky I was to have two babies born full term and full size, even though I was dying to have them taken out of me at 36 weeks. I love them because it reminds me that I could have really had a tough time nursing, instead of the slightly tough time nursing, and that I could have had REAL reflux issues instead of the mild ones...etc etc etc. I love your unvrnished hilarious truth!!!! Never change!! And I love Boulder's and Tertia's too.

Speaking of which...Boulder, how the heck are you??? And did you get the stuff? Please tell me you did!

Posted by: Chickenpig at Aug 20, 2006 8:31:17 AM

I love that book, even though we ferberized. I must have read it three times already.

I've lost friends over the truth thing--I don't think that hiding the unpretty truths does anyone any favours, especially not those coming right behind you. And actually, if you'd told me three years ago about everything we would go through, the ultrasounds and preemie birth and slow growth and reflux and mountains of specialists and no diagnosis and some sort of very rare genetic condition, I would have cried buckets. But now it's my happy ending. I think if I were to hide any or all of that, if I were to write or share only the parts that everyone thought were happy, it would only obscure the real joy I've found in my real life with my daughter.

I think that the best service we can do is to be honest about how absolutely unfuckingbelievably hard it all is, or can be--and that it's still the best thing that every happened to us--because putting those two truths together shows just how good the good parts are.

Posted by: Andrea at Aug 20, 2006 9:36:26 AM

I prefer it when people are as brutally honest about their lives as they can stand to be. I feel like it gives me the power of knowledge and helps me to prepare for unfortunate events that might befall my own perfectly pretty world.

That being said, everyone has their own opinion and level of comfort, whether it be with letting your baby cry-it-out, or showing a picture of your newborn in the NICU. If you think you're being abusive by letting your baby cry, well, that's far more important than anyone telling you otherwise. If you think the picture of your sick baby is disturbing, and are worried that it may disturb, that's more important than if it ever will actually bother anyone.

It sounds like it's worth reading.

Posted by: Erin at Aug 20, 2006 9:41:46 AM

I don't censor my truths. In all honesty, I feel there are far too many people who have been shielded (or shield themselves) from all the bad stuff that can and does go wrong. I'm a member of an online community comprised of IF, SIF, recurrent miscarriage and life after stillbirth bloggers, and the majority of these parents are upfront about the horrors they've had to endure. IRL, I'll show anybody pictures of my beautiful Nicholas, from delivery to the funeral, because that is my truth, and that experience wove itself into what I am today. Shocking, perhaps; maybe they'll get over it, but I have not. I have delivered two babies, and he will not be dismissed. So far I have not had anyone turn away in disgust or fear. This is reality, however unpleasant, and the head-in-the-sand approach doesn't work.

Posted by: Sisyphus at Aug 20, 2006 9:41:49 AM

I lay it all out there. The good, the bad, and the ugly. Because it's all my story, and I shouldn't have to hide it.

Posted by: Jenn at Aug 20, 2006 10:06:01 AM

Censor...IMHO, no. Disclaimer, yes. If you tell them upfront that there may be graphic content, then they only have themselves to blame if they can't handle it.

Posted by: KLynn at Aug 20, 2006 10:19:12 AM

I refuse to hide my unpretty truths. If I did...where would my son's first two months be? I don't have the happy pretty first pictures. Those are what I have -- a much loved little boy who just happened to be very small and very thin and attached to wires and IVs.

I was a NICU baby myself. At my wedding reception, my mother and my husband's mother had created collages of each of us from birth to the present, each one using one of our engagement photos as its centerpiece. I had one uncle who complained that I chose to include my first photo -- wrapped in gauze from my surgery, IVs in my scalp, skin blazingly red, monitors and probes of every variety attached to my chest and foot. And I was offended by his complaint. That is me. Being there, having the issues that I had and the multiple trips a year to the children's hospital to ensure that things were fine...it was those things that shaped who I am. That picture is the beginning of my definition of who I am. It created me. It's what I know and who I am.

And I hope that my son will look at the pictures of himself in a similar location and find the beginnings of his definition. Those unpretty truths allow us to see the strength that we might not otherwise realize we possess. They help (for me) to take away the fear of what may be.

Pretty? Maybe not conventionally. But beautiful in their strength, in their hope, and in their obvious love.

Posted by: Miss W at Aug 20, 2006 10:21:17 AM

Censoring my truths? Usually only for currently pregnant women. Even then I don't lie, I just don't contribute. Unless they call me and say "I'm bleeding, I'm cramping, do you think I'm having a miscarriage?" Then I ask if they want the optimistic or pessimistic viewpoint. Frankly sometimes its better and easier to have someone acknowledge the feeling in your gut. It almost makes it easier when someone else says it out loud. Hearing about the 6 babies I lost (including 2 passed the magic 12 week point and well into the second trimester) is hard, but they are part of the story of the 4 children I have. It's the full and accurate picture.

By the way, the bank won't take the $100 bill you sent me. They say Richard Nixon isn't on the $100. I told them it's the new $100, just like you told me, but they won't listen.

Posted by: Lisa V at Aug 20, 2006 10:21:55 AM

I think it's everyone's decision on how much to tell, how much to hide. I look at Inky's picture and tears come to my eyes--not because I ever went through that, but because she had to. I'm a bit of a Pollyanna and would prefer to look at a picture of her today, happy and fighting with her mother. But when it comes to my--relatively easy--story, I'm honest to a fault. How did we conceive? Drugs. Why was Miss P 11lb 5oz at birth? Gestational diabetes complicated by another non-pregnancy related medical issue (that's where I usually draw the veil, who wants to hear about my ass abscess?!) And, yes, I did have a c-section. And will have another one, after I conceive, again using drugs and following a GD diet to hopefully not have another huge baby. And I'm fat. Any my parents are insane. And my dad & I didn't talk for 11 years... Oh, shit, I'm on a roll now with honesty.

Posted by: Pink at Aug 20, 2006 10:24:34 AM

What a great, thought-provoking question! In answer, I did censor my unpretty truths, to a point. Mostly with people in my real life, like Boulder said up top. Online, I didn't censor anything but neither did I have anybody comment about how painful seeing my baby was for them. The first pictures I posted online were this and this, however we waited a month to have a for his birth announcement that we sent to family and friends.

When he was born, I understood the shock that seeing such a tiny, sick baby might have on some people. However now, as I look back and as I look at the picture you posted of Charlie, all I see is such an amazingly beautiful little boy. When I look at preemies, more than other children, I see such strength and beauty and my heart just soars. Perspective's a funny thing, huh?

Posted by: Kelly at Aug 20, 2006 10:27:42 AM

What a great, thought-provoking question! In answer, I did censor my unpretty truths, to a point. Mostly with people in my real life, like Boulder said up top. Online, I didn't censor anything but neither did I have anybody comment about how painful seeing my baby was for them. The first pictures I posted online were this and this, however we waited a month to have a prettier picture for his birth announcement that we sent to family and friends.

When he was born, I understood the shock that seeing such a tiny, sick baby might have on some people. However now, as I look back and as I look at the picture you posted of Charlie, all I see is such an amazingly beautiful little boy. When I look at preemies, more than other children, I see such strength and beauty and my heart just soars. Perspective's a funny thing, huh?


Oops! Fixed that tag, sorry!

Posted by: Kelly at Aug 20, 2006 10:28:55 AM

Oops, hit the post button before I was done...

Just wanted to share that I never withheld NICU pictures of my Boog. I was just so proud of him, and thought he was beautiful...all 3lbs 8oz, wires, monitors and all. Don't know if I ever scared anyone with the pics. Now, Tertia's pics of Ben made me cry terribly, but I knew what I was getting into when I clicked on the link. But what a beautiful way to remember.

Speaking of NICU pics...if you're interested...here's the Boog circa April 2004.

Posted by: KLynn at Aug 20, 2006 10:29:11 AM

I thought about it more, and bottom line is shit happens. And when it happens to you, you want to know you aren't the only one. If no one talked about bad things, we'd all be awfully lonely with them.

Posted by: Jenn at Aug 20, 2006 10:29:42 AM

I try to be careful with my "truth" in real life (note the word "try"), and as a consequence, truth gets spread all over my blog with very little attention to being judicious. I, like you, tend to assume that people who come to my blog can read my About page and determine if this amount of reality is for them or not.

Great review, by the way - you borderline child abuser!

Posted by: julia at Aug 20, 2006 10:31:51 AM

I, for one, am grateful that you share your unpretty truths. Because of you, and others like you, I've learned more about the realities of infertility, pregnancy, and motherhood than from anyone I know personally. After 2 years of trying, we are finally about 5 minutes pregnant (6 wks, 2 days, actually) after IVF#1, in which my ovaries limped across the finish line, yielding me one 5-day blast to hang all of my hopes and dreams on. Currently it appears to be making a happy home in my womb...for the moment. Because of reading your unpretty truths, I know this could all be over tomorrow or next week. I know that IVF#1 could turn into IVF#2 and IVF#3 quicker than you think. BUT, from you I also know that this could turn into the most amazing joy in my life, no matter how it arrives. I know to have hope even when life seems to be kicking you square in the ass and mocking you as you run away. I know that this is all worth it and that we will get there, somehow.

I do not occupy my thoughts with everything that could go wrong right now (well...kinda). I am hopeful. And I am so grateful for every moment and for your unpretty truths.

As far as my unpretty truths go, infertility is not a fun party topic. I am careful about how I discuss this part of my life. Infertility has amazingly brought me closer to some...including my wonderful husband and even friends who have not experienced it themselves. Others keep their distance, choosing to remain untouched by my unpretty experiences. And really, how can I blame them?

Posted by: Jess at Aug 20, 2006 10:41:10 AM

I know I hid the bad things. I was just thinking about this the other day when a girlfriend of mine told me she had a miscarriage. It immediately brought me back to mine. And how I had to hid the fact that I had just lost a baby to all of my coworkers who didn't understand why my eyes were so puffy and I couldn't stay at work longer than 4 hours.

I feel like I can be myself to the internet - hence the new blog after taking the old one down. Isn't that a form of hiding too? That I took down all of my pain and frustration of IVF when I was done and had my beautiful child?

I think it's human nature to want to show the pretty parts only. Put makeup on it or make a joke about something sad...just be happy all the time. Unfortunately, life doesn't really work that way, does it.

Just like Boulder, it made my heart break to see the movie of Charlie. I've been on your website for over two years and don't remember ever seeing that. It continues to make me happy however, to see how far he has come from that video. (I still like the "Baby Einstein" video you made with the liquor bottle :) ).

I was going to comment also about how different people take different things out of books. I'm wondering, as a published author, how she feels about how people are 'reading' her book. Hmmm.

Thanks Julie - for sharing the bad times with the good. I've not only fell in love with you and your family - but continue to send people here when they are dealing with similar issues. Or just need a good laugh (see United letter - ugh...O'Hare IS that bad :) ).

Posted by: Toni at Aug 20, 2006 11:25:30 AM

I've realize that people don't want to hear or see the unpretty stuff IRL. They may love you to bits but they just don't want to acknowledge it in any way whatsoever. I learnt that the hard way and lost a few 'friends'. It's hard to say but maybe it's for the best?! I will never really know. I don't regret it though - I know if I didn't let the monster out in the open I wouldn't have been able to stay sane. For me, telling someone/everyone is my way of support for myself.

The unpretty truth I'm speaking of is not the same as yous and Ayun's. Instead it's about cancer / chemo and radiation / deaths etc.

In a way, it has similarities. They are both something people don't want to acknowledge that it *can* very well happen to them. It's too close to home and it's too scary. Things aren't *supposed* to be like that (but we all know that it can and does). Totally out of their comfort level and daydreaming days.

Some, well shit, many prefer the "ignorant is bliss"..

Posted by: sweetisu at Aug 20, 2006 11:26:34 AM

I think if we don't share the unpretty truths, then when our friends go through their own ugly moments they may feel all alone, feel like there isn't reason for hope.

We share our stories in part to get credit for surviving something awful, and in part to express that these things aren't as insurmountable as they seem.

Posted by: Christy at Aug 20, 2006 11:31:37 AM

Yup, I am economical with the unpretty truth in my blog- I freely admit it. Because a blog's not, after all, a personal diary. Other people read it.

If other people read your secret diary, they should expect some unpretty, and serve them right if they find it. A blog, however is too public for me to air too much unpretty.

If you buy a book, you read the blurb on the back, and you can most often be sure of what you're getting. Blogs are rather different things. You never know what you're going to get, and one (well, me) would rather not shock people away.

It's a drawback, a lot of the time, that editorial voice.

Posted by: e at Aug 20, 2006 11:41:40 AM

Our daughter spent the first four days of her life in the NICU and we didn't take any photos of her in her bassinet with the tubes coming out of her. Mostly because I was sick and too drugged to remind my husband to do it (he's not much of a photog on a good day, let alone on the days his wife and child were at their sickest). But now, I wish we had.

I wish we could show her what those days were like. How terribly shaken we were. How we were lucky enough just to able to sit with her as those few days passed and, thank God, as she started to get stronger. I want her to know that although we were as scared as we'd ever been, we were also filled with a heavy guilt when we saw the other parents visit their babies because ours was the only 10-pound baby there--the one the other NICU parents gawked at, wondering what the heck that gigantic baby was doing in there next to their tiny ones.

My husband later admitted that he didn't take photos on purpose. He didn't ever want to remember seeing her that way. But, I did. I do.

As for my blog, I censor myself all the time which drives me mad. But, it's read by friends and family. And, much as I'd love to talk about taboo subjects such as the argument I just had with my husband or how my friend just pissed me off, my blog's mostly a baby-book of things I want to remember in the years to come. So, it's not the right place for that. I'm toying with the idea of starting another, anonymous blog where I can be freely me, warts and all.

Posted by: Colleen at Aug 20, 2006 12:14:06 PM

My boy never made it to the NICU ~ he died in the delivery room, 25 minutes after his normal, fun-filled, happy "it's a boy!" birth.
He had hypoplastic lungs, as we learned 2 days later when they sliced his little body open to peek inside. No reason. Just one of those things.
I'm pretty careful about how I tell pregnant people. But, I do tell. I realise that his story has the potential to scare the living crap clean out of anyone, much less someone who has no idea that sometimes babies die.
The complusion to include him in my life makes me tell. I simply cannot be who I am and what I have become if I deny him.

Posted by: Heather at Aug 20, 2006 12:27:34 PM

I was a first time pregnant woman when I started reading your blog. My due date was a month before yours.

Your story, it scared me. But not for me, for you and Paul and Charlie.

I keep coming back because I think you guys have a wonderful story to share. And you're hella funny.

Posted by: LisaN at Aug 20, 2006 12:31:15 PM

I'm MORE likely to share them than mundane pleasantries. It's partially identifying as a writer, partially residual freaking-out-the-squares, mainly the feeling that nothing, absolutely NOTHING of this life needs be witheld, really. NICU baby pics and "Ask Me About My Abortion" t-shirts and whispered confidences...

Posted by: Jul at Aug 20, 2006 12:41:10 PM

I'm honest with pregnant women with twins as I know too many lost pregnancies from preterm labor because they weren't vigilant about the signs.

But your comment about "shattered dreams" really hits home with me. That is what NICU is about and although I had a different perspective having lost twins before and now at least having living twins. I was still sad and shocked about the loss of my pregnancy and the huge feelings of failure of my body not to keep them in.

It never crossed my mind about our early NICU pictures. No one ever said anything. I would be cautious about posting pics of my first twins we lost - alot of people can't handle seeing them although I think they are beautiful.

But overall for new moms I've learned to not say as much. Most if they get past the 1st tri will have successful pregnancies - I seem to be the small percent that doesn't but it seems I now know too many moms who have suffered too many 2nd tri losses and full term losses.

Posted by: Lauren at Aug 20, 2006 12:45:08 PM

Small talk is small talk and I keep 99% of the unpretty truths out of it.

Anything beyond small talk with someone over the age of 20 or so? Forget it. No censorship based on the pretty/unpretty scale whatsoever.

Adults should have a healthy relationship with life's realities, I believe. If someone chooses to stay in a world of fairy tales and fantasies, that's their choice, but I won't be aiding and abetting.

In talking about the scary parts, we learn how to cope from each other. That's important. How else can we cope? Life is not an endless hail of blessings for anyone.

Posted by: Ingrid at Aug 20, 2006 2:05:16 PM

I think I'm pretty forthcoming with the truths. I do mainatain some semblence of it for privacy, but when it comes to telling the world about my vag and infertility, I'd rather tell them the truth than to have them live in ignorance. Should anything bad happen, I'd probably do the same. I've always found your chronicles of Charlie from day one to be more refreshing than anything because it offers not only a learning experience, but also hope. I read all of it over again from time to time because it's definitely helpful when you feel as if you're losing your sanity.

Now, I'll wait for my crisp $100 and a thank you card. I'll even take half of that money and buy you the extra large bottle of Grey Goose.

Posted by: statia at Aug 20, 2006 2:16:11 PM

Yesterday, I said to the woman we were interviewing to care for our son, "He's a surviving twin" and watched her face change with that information. But it's part of who he is, and who we are, and I don't think it's fair to anyone to hide that. Including our daughter, who was real and ours and deserves to be acknowledged even though she's gone.

I tell anyone who's really going to be in our lives what has happened to us, how early our son came. Although the news of our loss traveled like wildfire (and I say that not as a cliche but as a true metaphor of destruction), months later there were still people we care about who had only heard that we had a son, and when they called to congratulate us I would say, "Well, but we lost a daughter." When our twins were born, we sent out a joyous email announcing their arrival and including their birth weights--and received very few responses, as people were too stunned and alarmed by the news to know how to react. But it was who our children were, how they came into the world. If it was too much information for some people, it didn't matter to us.

I don't talk about the infertility, the early pregnancy losses, how much we suffered before we suffered the loss of a child. I may, someday. For now I've sifted out the most critical things that have marked us and those are the things I share with the people who are in our lives, or going to be. Because how can you ever have intimacy with someone to whom you have not told THAT? And how do you ever say it later?

Posted by: Casuarina at Aug 20, 2006 2:18:09 PM

I'm actively involved several groups for parents of twins, triplets and more, and part of my volunteer work is as a contact for newly expectant parents of multiples.

I am cautious with sharing our own experience, because it was "scary" having complications, and having triplets born at 30 weeks. Our story has a happy ending now that our kids are 6, but there were many times that we were terrified for our babies, and for my own health.
Initially I recommend good books and websites, and tell how to join local and national support groups. I don't tell them exactly what happened in my own pregnancy unless or until they ask more questions. But I make sure they have access to accurate medical information about the risks of multiple pregnancy, and warning signs of preterm labour or other complications. And I have tried to offer support to a few moms who have suffered losses.

This past year our kids did a kindergarten project about themselves, including bringing in a baby picture. I let them choose pictures of when they were home from hospital, or of their first smiles at 4 1/2 months, when they looked chubby and cute and happy. More suitable for a roomful of 5 year olds, I thought, but I felt a little sad at "censoring" our story. Our kids sometimes look at the very first scrawny red-faced wired-up NICU pictures, while I tell them about what was happening to them. But they like the cute happy baby pictures better.

I've never yet shown them the very first picture of 3 fragmented 6 or 7 cell blastocysts in a petri dish before their IVF transfer. I guess maybe some day we might, but not until they are old enough to understand more biology. I still find it disturbing to look at, though I'm not sure why. Would you want to see a picture of yourself like that? So fragile and vulnerable and scarcely human. I know they will want to ask which one of those pink blobs is which kid, and of course I have no answer!
Your blog is great for its openness, honesty, humour, and sarcastic attitude. Don't stop telling your story the way it is.

Posted by: SheilaC at Aug 20, 2006 2:21:58 PM

When my son was in the NICU, he was the healthiest of the bunch. His problems were minor (not to me, of course) compared to the other babies. And I saw things that I once wished I had never seen. For weeks, I had nightmares about the tiny babies. It seemed too painful to even know about. I realized even then that not seeing it didn't mean it didn't exist, but at that time when I so worried about my own son, I felt like I simply could not deal with that reality. I often wished the images of those babies would leave me.

Then someone very close to me gave birth to a 1.5 pound baby. When I went to visit the NICU, I wasn't shocked by the sight of her daughter. She later told me that I was the only person not to gasp out loud or burst into tears. Although I did cry later, I was glad that I was able to provide the support needed at that moment.

So, basically, I think that reality has a way of catching up with you. You might think you can avoid it forever, or pretend bad things don't happen, but that doesn't change the very basic fact that bad things happen. We need to be honest about it, and we need to face it even when it feels like an impossible task.

Posted by: MoMo at Aug 20, 2006 2:40:33 PM

Anybody that doesn't like my unpretty truths can kiss my cellulite-ridden fat ass.

Seriously, if I had ANY inkling of what my reproductive career might be like, if anybody who had had a miscarriage had bothered to be open about it, shared their grief, then maybe I wouldn't have been so shocked and blindsided when shit started going wrong for me!

One of my best friends, an effortlessly fertile woman with 4 children, has never shied away - if I needed to tell it, she was there to listen to it. I needed her all through the tough shit, and thank goodness she was there for me. I'm not really interested in making things pretty and easy for people, but like you, Julie, I try to use humor a bit to let people know I came through it all okay.

And so that I can feel like maybe I didn't go through all of that in vain, if I can educate people on miscarriage, mullerian defects, IVF procedures, the grief of infertility and pregnancy loss, and my latest fun development - adenomyosis! - then I'd like to continue sharing my unpretty truths with those who listen. Because maybe they will someday have a son or daughter, or friend, or grandchild, who goes through what I did, and they might just be able to help them.

Posted by: erica at Aug 20, 2006 3:18:24 PM

This is precisely why it is you who must write a book. Because in the sea of positive happy stories of beautiful babies and no-tears births, the dirty guy crouching is in sore need of a voice.
I've tried to not hide my unpretty truths, at least in my blog, and, whenever I could, in real life too. Yet there's a fine line between unhiding and wallowing, between healthy processing and willful sinking into. The pain is unreal and therefore really ineffable, but we need to keep talking about it. And, god knows, on some level I've been helped by hearing honest retellings of the shit that others have gone through. It makes you feel like less of a freak, you know?

Posted by: zarqa at Aug 20, 2006 3:27:50 PM

I didn't find the picture shocking. (I can see the potential that NICU photos could make someone sad, but damn, those babies are fighting so hard.) My daughter had dislocated hips at birth (disclaimer: only an hour in the NICU, no long term effects, no complaints on my end. I was still in recovery and never even went to the NICU.) There is a picture fo her little legs askew, lying on the scale. And when Ayun said the picture was disturbing or might disturb some people. I thought of that picture of my daughter. A picture we showed everyone. Because she was on the scale and it showed her weight. Who's looking at the legs--look at the pounds. And so what? That part of the story of her birth. Pretty or unpretty, the truth is part of the story.

The blog tour of reviews of this book have left me completely flummoxed as to whether it will be a good read. Almost everyone's review has had some part bother them. If I had time to read anyway...

Posted by: Sarah at Aug 20, 2006 4:15:01 PM

I'm one of the moms with the healthiest-baby-in-the-NICU stories... she inhaled meconium, had a torn lung and a bunch of respiratory problems, but then 7 days later we got to take home a healthy newborn. Our story is pretty tame, compared to yours, Julie, or many of the above posters', and heaven knows we've had a brilliantly happy ending. But it was still pretty traumatic at the time. I've found that sharing that truth, and the truth about how traumatic it was, has become easier with time. It's not something I trot out to currently pregnant people, unless they ask... but I always mention it in any discussion about my daughter's birth, in a very matter-of-fact way.

I've also begun to share with more people about my miscarriages and my clotting mutations. That unpretty truth is more private to me, but I've gotten to the point where I can tell it like it is when I need or want to.

Posted by: Shelley at Aug 20, 2006 4:16:18 PM

I was one of those people who tells everyone everything, because the truth is going to come out anyway, so you might as well not have to remember who you told what.

Then I became pregnant with triplets. During a tenuous pregnancy frought with ethical dilemmas & natural disasters, I was continually stunned by the awful, thoughtless comments my "unpretty truths" elicited. I was also stunned by the warmest wishes coming from the least-expected people - usually people who had experienced some tragedy of their own.

I learned to read who could handle the truth, & who just didn't have enough experience or mental capacity to deal with it in a kind way, & so for a while I had two versions of my pregnancy story. Now that I am through the crisis & not so vulnerable, I tell the real deal, every time.

Posted by: vickey at Aug 20, 2006 4:27:01 PM

You asked: "I'd like to know how you handle this. Are you careful with your unpretty truths?

I'm asking what you think of the recent virtual commotion that occurred at your friend's site. If I recall correctly, Karen was somewhat dubious about the virtues of sharing and constantly rehashing the truth that one's gain is somebody else's loss. She was not entirely insensitive about the duality of greeting a new life. She simply stated her desire to welcome and congratulate the impossible happening by not dwelling on the supposed unpleasantries that are also associated with it.

So how do we reconcile the two sides of this seemingly annoying conundrum? Do we betray our primal instinctive desire to survive and thrive if we choose to acknowledge that our happiness is invariably tarnished by someone else's tragic story? What is more important and apt? To trudge along, oblivious of the imminent disaster, or to be permanenly aware of the perils to come along?

I don't know, but would give my left pinkie to hear your opinion on this one.

Love,

tsena

Posted by: at Aug 20, 2006 4:46:35 PM

I think that life is difficult and part of what makes us happy is having overcome the difficulties. Why not share our war wounds?

Posted by: Lisa at Aug 20, 2006 5:16:53 PM

Like Colleen, above, I didn't take pictures of my two in the NICU and I wish that I had. I wish I had them just to remind myself, like I need reminding, of how far they've come, how fragile they were, and what survivors they are. And they weren't even in the NICU that long.

I also have no pictures of me in the months after their birth when I could only get around using a walker. I admit to wanting to hide this truth. I wanted to hide it to myself then and I want to hide it to myself now. When I told my husband that I wanted to buy a jog stroller, for instance, he asked me whether I thought I would be running again. The answer is, probably not, but it's not something that I can quite bring myself to accept.

I think that there's a power in both telling an unpretty truth and in hearing one. However, it takes strength and skill to do. Sometimes I have that strength and skill; sometimes, I don't.

Posted by: Suz at Aug 20, 2006 5:23:50 PM

I'm not careful with my unpretty truths the way I used to be, partly because for me there seemed some inherent shame in not mentioning my them, some posturing involved in pretending I fit into the club. (What club, I wonder in retrospect) I am also not careful with my unpretty truths anymore because I desperately wish that I'd known more about possible complications when I was pregnant the first time--I detest the "don't scare the first time pregnant mommy!" kid gloves--there is a way to inform without intentionally frightening. I think we owe it to ourselves to stay informed. Your blog is fantastic in this regard.

Posted by: at Aug 20, 2006 5:30:53 PM

I have a 25 weeker who is 2. Sometimes I share, sometimes I don't. It depends on where I'm coming from- genuine conversation vs. mild narcissism that I've "been there". Not everyone HAS to know that. It does not define myself or my child, even though thats where we begun.

Posted by: ellen at Aug 20, 2006 5:37:16 PM

hmmm, I started to say that I just let it all hang out, that I talk about Little Man's NICU stay and what brought us there truthfully, and about Trout's c-section, and most of the time I do. However, due to years of reading comments on online sites and others about insensitive comments, I have to say I HAVE become more careful about telling our story - careful, but I haven't stopped doing it. It is life. Has anyone stopped talking about 9/11 because it wasn't pretty? How about WWII?

That said, I did warn people when they were about to look at the graphic pictures of my first c-section and the pictures from the NICU - Little Man was the biggest one there, but also the sickest at the time. What his nurse told me was that the big ones are the sickest, but once they decide to turn the corner, they do it in a hurry, and that's what happened. But I do recognize the pictures can be frightening to some (like my MIL, who is so squeamish about body parts and functions that my SIL still, at age 31, likes to sneak up behind her and whisper "penis" just to make MIL's legs go weak) so I give them fair warning. Only a few have chosen not to look or been bothered, and I have to say that if they were disturbed by them, they either didn't tell me at all, or were quite polite about it - I did warn them, after all.

Posted by: FishyGirl at Aug 20, 2006 6:50:03 PM

Pre-blogs, the unpretty truth was routinely untold. Women often suffered alone, thinking they were the only ones. Fifteen years ago, after my third miscarriage, thinking I might never be a mother, I knew no one going through the same thing. No one. I didn't know which was going to push me over the edge for good first; the pain of trying to have a baby or the pain of feeling so terribly alone.

Tweleve years later when I read my first infertility blog, I wept tears of relief. I can only imagine what a comfort it would have been at the time.

In the same line of thinking, the first pictures I saw of preemies on-line did shock me. But when my dear friend proudly, but tentatively handed me a picture of her preemie, I was prepared. It enabled me to be there for my friend in a way that was previously not possible.

Life consists of many unpretty truths. Do I tell people I've just meet that I've been pregnant four times and have one child? No. Do I censor the unpretty truth anymore? No.

I suppose I've reached a point in life where I am less concerned with causing someone to worry than I with causing someone to feel alone.

Posted by: Kathleen at Aug 20, 2006 6:58:56 PM

A few thoughts--

After reading this book, I came to the same conclusion you did, Julie--very funny, and interesting as cultural anthropology, but so far removed from my life!

As for the concern about the gritty reality of the photos, I suppose the same could be said. Many of us reading here know of such stories of loss, both our own and others', that the sight of a baby in the NICU may bother us much less than it might bother someone whose life had been unsullied by infertility and miscarriage (and, as you noted, those people are probably not the majority of your readers).

In the case of Charlie's pics, when I look at them, I think, "Look at this amazing baby--he may be covered in tubes and horrible things, but he's alive, and he's here, and he's beautiful." A picture of a live baby born after so much struggle to get there could never be anything less than miraculous to me--as you said, he's a happy ending, and why should you ever hesitate to celebrate that? Why shouldn't you, like any new mom, be able to share your photos of your new son, tubes and all? There may be some who find them unpretty, but if so, it's because of their own lack of perspective.

The other day, sorting through hospital pics of my boy, I came across one of him from his very brief NICU stay, covered in wires and monitors, and my heart stopped a little, to see him like that (I was too busy bleeding to make it to the NICU, so it's a sight I never saw first-hand). I'd love to edit those pictures out, but that would mean editing out a very real part of his story, and I can't do that. It may not be pretty, but it's us.

Posted by: Jen at Aug 20, 2006 7:38:19 PM

I first came across your blog when I was going through multiple miscarriages and you were the first person I came across online who was going through an equally tough time with honesty, humour and without sentimentality. I NEEDED your truth then and it helped me through.

My daughter and Charlie are around the same age and when she was very young I remember vividly turning on my computer in the mornings and checking your blog to see if you had had as sh*tty a night as I had just had. Your truth helped me through that period as well.

I was shocked by how tough the first few months with my daughter was, even though she was healthy and beautiful. I still chastise my friends for not warning me, for not explaining how BRUTAL it can be. Instead I felt alone, depressed and ashamed, ashamed that I wasn't enjoying this time one tiny little bit.

It's only now that I've discussed this with other mothers that I know that I was very far from alone and wish people had been more honest before.

I think we women owe each other honesty at the very least, as sometimes it's the most supportive thing we can do.

Posted by: Paola at Aug 20, 2006 7:42:43 PM

You (and Ayun) *are* the happy endings. From someone who has had an UNhappy ending, I can appreciate the different. But happy or otherwise, I've never spared my readers from my endings. For a picture of my second son (stillborn), I did put up the link with a warning, in case someone would not want to see something so upsetting. But as for writing down what happened, I didn't pull any punches.

Now in person it's a different matter. If someone asks, I'll tell them, but I don't volunteer any informaiton.

Posted by: callistawolf at Aug 20, 2006 8:00:50 PM

Just thinking - everyone is assuming references to wires and tubes, but what if one's baby was born with a hemangioma that covered half his/her face? That can be dangerous, scary, and as equally scary-looking to others as all the wires and tubes. Should this parent censor baby pictures?

It's a different situation, yes, but still part of the child's life. Tubes and wires might not be pretty, and may be upsetting, but it's those tubes and wires that give those babies a chance at life. To deny that is to deny the struggle.

I for one would rather see the reality, and deal with my reactions, than be "protected" and only see the perfect, chubby, pink baby pictures. They're all beautiful to me.

Posted by: projgen at Aug 20, 2006 8:01:21 PM

I truly try not to be careful with the truth that may not be popular. I write online not to make friends, although that has been an incredibly nice bonus, but primarily for me. And I know I've said things in the past that have hurt and alienated people who I would love to have kept as readers, some of it justified and some not. But I still feel that being true to myself is the most important thing.

Posted by: TB at Aug 20, 2006 8:34:58 PM

I was going to say I censor things, but then I remembered that last week alone I told at least five strangers about that weird thing my cervix did when I was trying to push my son out. Really though, spend enough time around the infertility blogosphere and you'll hear it all.

Posted by: chris at Aug 20, 2006 8:47:22 PM

I read your and other blogs because I appreciate the truths they contain.

OTOH, someone I know a little has a family member dx'ed with ovarian cancer...I thought briefly about referring her to Cancer, Baby's blog, but decided against it. Partly because I do not know her well enough to be sure it would be right for her. But also (and truthfully, mostly) because of how Jessica's story ended.

A tough call, I think, between maintaining optimism and knowing how things can go...

Posted by: Alex at Aug 20, 2006 9:27:32 PM

I don't ever, ever tell a pregnant woman (or her husband) about the birth of my first daughter.

And eight years later, I still have the occasional NICU flashback - you know, you're flipping channels, go past a medical drama, hear "ping ping ping" and the fear and dread hit out of nowhere. You sit there and tell yourself, it's over, she is fine, it is insane to feel like this - but you hear your heart pounding in your ears and your throat closes up and you can SMELL that hand soap and your semi-dark living room becomes the twilight of the NICU....

Posted by: PaulaR at Aug 20, 2006 9:33:01 PM

I am all too willing to share the unpretty truths in life. I second what the previous poster said about the blogs (and for me the IVFC boards) being an important source of these truths. Hooray for "brutal" honesty.

Posted by: kris at Aug 20, 2006 9:36:24 PM

Ok, I think I'm about to make myself really unpopular around here, but try to stick with me until the end, ok?

When I was pregnant with my first child, I was PARA-FREAKING-NOID. I don't know if it was because it took me two years (I know, that does not get any sympathy around these parts) to get pregnant, and in that time I convinced myself that I was somehow "broken," or what, but I felt like I was holding her in through the sheer force of my will, and if I stopped focusing on the pregnancy for a moment, I would surely miscarry.

So, I carried to 39 weeks and she had minimal health problems (nothing like what most of you have faced, although we had a few scary moments due to preeclampsia, a lack of milk on my part - she was nearly "failing to thrive," and a hematoma on her head). She's fine now, except she's getting molars which is a hateful, hateful passtime.

But during the pregnancy I was scared witless. I found, and started reading, your blog during that pregnancy. And while I did read some of the scary parts, I was able to choose WHEN I went back and read them (I gave birth to her last August, so it was probably around April of 05 that I found you... I had to get into the archives for the scary stuff). I could choose to read them on days when I was feeling strong and non-hormonal, because I really wanted to get to know you. I didn't read them on the days when I hadn't felt the normal amount of kicking, or when I was spotting, or when I was on bedrest, or when I was just plain Crazy Pregnant Lady, because it was just too hard. But either way, it was my choice whether or not I came to "see" you.

Now, to contrast that with "real" life, whenever we'd go out, once I was showing, I ran the risk of someone telling me horror stories - no matter what sort of day I was having. I don't mean stories like yours with a happy ending - the waitress at Red Lobster told me in graphic, gory detail about the baby she'd lost at 22 weeks (I was about 20 weeks at the time), and she told me to eat "as much as you can" because her baby had weighed an ounce less than the cut off where they try to save it (???) and if she'd just weighed one more ounce, they would've tried, but instead they just let her die (ok, WTF? Is this actually how it works? I still don't know). To hear this, at 20 weeks, was absolutely traumatizing for me. I understand that it was her truth, and that she had a right to share it, and maybe even a responsibility to her daughter that died to share it, but I just wanted to eat my freaking Cheddar Bay Biscuits and shrimp pasta in peace and not have to think, "Oh my God, if I go into labor now, they won't even TRY to save the baby!!!" for the next two weeks.

I think that you have to be clear on your motivation in these situations. Are you trying to gain something for yourself? What is it? Intimacy with the person you're telling? If so, is this the best or most appropriate time for HER to be gaining that intimacy with you (or can it wait until her baby is safely delivered?). Are you seeking sympathy? (Don't get defensive, you know there are people out there who tell their "horror stories" for sympathy). Or is your motivation for the other person? Are you trying to prepare her for what may become her reality? If so, ask yourself, could any conversation have prepared you in the slightest for what you went through with your child? My guess is, "No." Are you trying to burst her little bubble of security, even if it's "for her own good," perhaps she isn't aware (or you don't think she's aware) of what can happen to babies? If so, is it really your place to do so? Shouldn't that be between her and her doctor? Really?

I guess what I'm saying is that I can't and won't ask you to censor what you say to most people, but I would ask you to have an extra bit of care for the fragile, hormonal, pregnant strangers out there - the ones you don't really know, who may not react to your story in a way that you'd predict (because you don't know them well). Be aware of your motivation, and make sure that you're telling for good reasons. Because while your stories have become your reality, to most of us (and believe me, I know how lucky we are), they are not and never will be, and we don't know if we have the strength to live through what you went through, and we don't want to find out if we do, and we really have enough to worry about when we're pregnant, without having to hear graphic, detailed stories with bad endings.

It doesn't mean that we don't care about you, as women and as mothers. We do. In fact, we can learn a TON from you. But pregnancy is hard, and hormones are hard to deal with, and it can be really scary carrying your first child, even when everything's fine. There's enough unavoidable stuff to be afraid of (like getting to be as big as the broad side of a barn and contractions and pushing out a 6 - 10 pound baby and C-sections), without putting us in a position to have extra stuff to worry about that probably won't happen to us.

Posted by: Annie at Aug 20, 2006 9:41:55 PM

Great blog! I'm just getting ready to start my first round of IVF this fall/winter and it's refreshing to read about it from someone who doesn't have a problem mentioning vodka in the same post as baby. Yah! Thank you for all your brutal truths.

Posted by: Miss at Aug 20, 2006 9:47:13 PM

I'm learning a lot as I'm reading these comments. For many years I never knew about online journals like these, and the only place I ever met anyone going through this was in my in person support groups and in fertility clinic waiting rooms. With them I could be open and tell my truths gently or bluntly depending on who they were and what stage of trying and succeeding, or failing. I've had to leave my in person support group because my story of miscarriages and stillbirths was too much for the first timers there. I'd begun to feel like a freak, and I tried starting an anonymous blog after reading many of you, but even on the internet, my story is too extreme for some readers. I almost WANT to post photos just to prove what really happened, happened. Many of my real life friends know the truth but can't handle it, and the politicians I've lobbied for better treatment of infertiles and bereaved parents have reacted so badly, at one point, they didn't even want to talk to me. I have to keep trying and telling my truth pretty or not, because if I don't, then who will? If not us, the bloggers, then who? Stars like Oprah won't. She still tries to pretend she never had a preemie son who died at 2 weeks old! Unpretty truths have to be told because we're the ones making terrible choices about medical termination and unplugging life support for our dying kids. And the public is trying to pretend that all babies live and every NICU is a success story. Keep telling the truth Julie, the good the bad and the unpretty, and I'll keep reading.

Posted by: Aurelia at Aug 20, 2006 10:07:45 PM

I don't share my story with every person I sit next to on the bus but when the topic of family building comes up I don't hide the truth or minimize my experience. It was a tough time and I am proud that my husband and I made it through to the other side. It changed who we are as people and if we want people to really get to know us they have to know our history. Also you never know who is listening -- maybe they are going through something similar and telling the truth will make them feel a little less alone.

Posted by: Elle at Aug 20, 2006 10:30:39 PM

I have some pictures that I don't hesitate to share because they show how far we've come. My 34-weeker was so little and now she's so big. We had our issues, we dealt with them and we're ok. I see it like you- we're a happy ending.

in the early days- our "scary" pictures were the reality. This is what she looks like in her isolet... this is what she looks like hooked up to the monitors... this is how tiny she is in her car seat.

I remember looking at pictures of 24 week preemies when I was 24 weeks pregnant and crying my eyes out, but I was grateful that someone had shared their reality with me. I think it prepared me for having a preemie myself, in a way. It's not something you would ever want to experience, but people do every day, and knowing that there are people out there who have done all you have and more is a great solace.

Posted by: anotherjen at Aug 20, 2006 11:27:27 PM

Hell no. I have no qualms about spreading it all out there. Emergencies, NICU, bad news upon bad news, lifelong disabilities, and everything else. Why should I be ashamed? Why should I hide things that are just a part of life? MY life?

And - hell yes. I want everyone to have a nice happy life and not be worried about bad news and to know YES! it will all be okay and don't you worry, it will probably NEVER happen to you, and we don't mind that life sucks anyway so SMILE SMILE SMILE.

Kind of depends on my mood, I suppose. But most days I feel people spend far too much time on touching up and editing, and not nearly enough time on the truth. So I go with truth, shocked looks be damned. Life is messy. Life is scary. Life is unfair. That's what makes it so damn beautiful. What's wrong with being honest about that?

Posted by: Mete at Aug 20, 2006 11:54:40 PM

I do censor a lot of the ugly truths surrounding my daughter's birth, and now I censor a lot of the ugly truths surrounding her severe, uncontrollable asthma and the fact that her right lung collapses when she gets even the smallest cold.

I do it not to protect the first time moms or others who may read my story. I do it because these things are HUGE and often terrifying in our lives, and well-meaning but thoughtless responses are too painful to me. Sometimes I don't feel like explaining. Sometimes it just feels too private and scary to share.

I am glad that there are stories like yours online for families to read. Because while you can never really be prepared for having a baby in the NICU, it is good to at least consider that it may be a possibility.

I forget how tiny and brand new Charlie once was! He's so gorgeous in all of those photos.

Posted by: Natalie at Aug 21, 2006 2:10:57 AM

On the one hand, infertility truths need to be told. Hushing them up is horrible. It perpetuates the idea that infertility is shameful and shuts women into isolation when they need community.

On the other hand, is there any good result that comes of scaring a pregnant woman half to death with everyone's horrible labor stories? No one actually believes these days that labor is something normal that can be coped with without an arsenal of drugs and needles and machines. We're brainwashed by the "I suffered longer and harder" cult of swapping nightmarish labor anecdotes. Fear is the enemy of natural birth. There has to be a way of conveying our experiences to each other without introducing labor-halting terror into what might otherwise be normal deliveries.

I guess it's like breastfeeding. If all you hear is how breastfeeding is universally impossible and no one can do it, you're set up not to succeed. But then, if all you hear is how breastfeeding is sublime and doesn't hurt a bit, then you feel like a failure at the first touch of thrush. There's got to be an "educational but not discouraging" middle ground for this stuff.

Posted by: Marie at Aug 21, 2006 8:07:38 AM

I'll chime in and say that when I read this book, I thought the author did a great job of sharing her experiences in the NICU, with nothing held back. Or whatever she held back, I didn't think she did so because she was less than brave or honest, but because it was her story and her daughter's and she told it in her own inimitable way. IMHO, most of you would probably like this book too, or at least the NICU chapter.

Posted by: flashbulb at Aug 21, 2006 8:36:11 AM

Great post! I think the honesty is perfect and those who can't handle it can stuff it. When I got pregnant, I cried tears of joy the first time a mom friend took me aside and told me she hated being pregnant too, how it's OK to want to smack those people who tell you pregnancy is all roses and puppy dogs and oh the glow! The energy! The vitality! When all I felt was the puke, the exhaustion, sciatica, bloating, constipation, depression, etc, not to mention the guilt of actually being pregnant and not likeing it when it was supposed to have been some sort of miracle conception since my doctors don't know how the "girl who doesn't ovulate" obviously ovulated once. Same holds true for breastfeeding.

But there's a fine line between sharing your stories for shock value and sharing them to offer support. We women and moms need to make sure we tread that line carefully, I know i've appreciated the few women bold enough to step forward and share their not "normal" pregnancy, birth, and breastfeeding stories. sure, some don't really apply to me specifically, but they are stories of strength and hope and (mostly) happy endings and that's what is so important.

Posted by: katie at Aug 21, 2006 9:10:17 AM

No - I'm not careful with any of my truths. Some of them are very dirty, some of them hurtful, some of them shiny & pretty. But they're all me. In fact I was uncomfortable with the fact that my husband didn't want me to take pictures in the NICU. "I don't want to remember him this way." I needed to honor that, so I cherish the memories I have of him in there - 'cause I know it made him stronger and let us know of the tough road we're going to need to go down when he has surgery in 4 years. It does no good in my mind to cushion the blow of my own life. White lies - fine. "You're new haircut is GREAT!" But I'm not going to soften my life for anyone else - after all, why should they get a break when I had to live the damn thing?

Posted by: Michele at Aug 21, 2006 10:31:35 AM

Even though we had a pretty blissful stay in the NICU (or as blissful as it gets with a 31 weeker), reading about the NICU can still rip me to shreds. But the photos? The photos don't bother me one whit. I quickly learned to screen out my own kid's NG tube, to the point that its absence took awhile to register.

Your question is a timely one, as I was at a meeting last week with a woman due in October. I ended up not saying anything about our circumstances. Not because I was ashamed, but because it just didn't come up in conversation. I think I'll be more than happy to tell, though. Because it's my truth, and because I have a beautiful little girl who deserves to have her story told.

Posted by: runnerwoman at Aug 21, 2006 10:33:22 AM

I think the unvarnished truth should always be out there. That's why I "believe" in" blogs, like yours and Tertias, and Cecely's, and Julia's. I think that it's the write of the story's holder (yours in this case) to tell it how you wish, and I appreciate the lack of censorship more than I would appreciate censorship.

But, that's not the same as telling the 5 minute pregnant 27 year old that, oh yeah, she might miscarry, or rush to the hospital at 25 weeks and loose her baby. Those things could happen, and they do, but we could also get hit by a bus as walk down the street.

I think it's interesting to hear other people's take on the Big Rumpus on this revisited blog book tour. I read it when it first came out, and loved it. I even wrote a note to Ayun Halliday (which I never sent), that talked about how I loved the book in spite of the fact that we lived in, and had always lived in completely different worlds. Ayun's book also made me jealous of breastfeeding (I didn't make it with my first), and determined to nurse my second (as did Annie Lamont's book, which describes a scene where she feeds her Sam in the moonlight, and feels one with the universe).

But, one thing you left out was when Ayun's BF'ing relationship soured, when she was pregnang with Milo. Remember her tenative and panicked questions of other mothers -- about whether they could stand nursing while pregnant? that's where the truth matters, where you need to know that you aren't alone.

bj

Posted by: bj at Aug 21, 2006 10:55:55 AM

My very first thought was "No, I don't censor my truths."

Then my second thought was "then why do only 3 friends know about my miscarriage?"

I found your blog back in november, right after I had miscarried baby #1. [Thank you, Google. Perhaps it was the phrase "bleeding on bathroom floor" that led me to you. Or maybe "effects of vodka after d/c"]

Anyway - I guess in a way the reason I never shared that suckiness was that it was MY suckiness. I owned it. At the time, it was so devestating that the last thing I really wanted to hear from people was "Oh, yes, well, MY miscarriage blah blah blah". It was about me, not them. And since our families knew - I already had to listen to my husband mother make assholish comments.

The funny thing is - I think now I would like to talk about it, and tell people the truth. But it's a little late for that. [I'm 31 weeks along with #2. What purpose would it serve?]

I know my truth is nothing compared to what so many women have gone through. I am not infertile. I was the victim of a random act of 1st trimester bullshit. I certainly don't mean to try to "outpain" anyone.

I was never scared of the pictures of Charlie. How could you be? He was stunning. Or, a little G&D, perhaps.

Anyway - I've meant to say this for a long time. I've learned so much from you and all the amazing women who blog right along with you. I am so glad you never hid YOUR truths. Thank you.

Posted by: Libby at Aug 21, 2006 11:14:55 AM

Hrm... photographically, no. There have been "unpretty" pictures of Shoshanna online since DOL 2. And I'm pretty sure that some of them would be considered shocking/disturbing/whatever.

But they're her baby pictures. And anybody who can't handle looking at them can't handle our experience.

That said, I did present a sanitized version of our NICU experience in her blog.

Posted by: Sarah at Aug 21, 2006 11:27:48 AM

I found if I hide the unpretty truths, the pretty stuff doesn't seem that amazing.

For instance, if we all didn't know the struggle you guys went through, we couldn't rejoice in the fact that your bouncing boy is....bouncing!

Posted by: Tammy at Aug 21, 2006 12:06:10 PM

I love reading your blog for your honest take on things and candid humor. I don't hide the unpretty stuff either. My albums are full of the unpretty truth of my 6+ weeks on hospital bedrest and twins in the NICU. I consider myself soooo blessed/lucky whatever you want to call it to have healthy happy kids -- I'm proud of how far we've come. One person started to look at my album and had to stop because of her own painful experiences, I felt bad, but I didn't know her situation. I don't want to hide my family's truth.

Posted by: Beth at Aug 21, 2006 12:32:20 PM

My blog is relatively uncensored, only my fertility story will remain untold. Who wants to read about the promiscuous adventures of an uber-fertile who got pregnant on several different methods of birth control leading to three abortions before she was 25? Nobody? Nobody wants to read about how I cried every time I got my period for about 2 years after the last one? Well I didn't really think so. That's why I haven't told that story and might never, I fear the judgement, the name calling, etc. but mostly, I just don't any of my infertile cyber-friends to hate me.

Posted by: Anon this time at Aug 21, 2006 12:42:11 PM

What Annie said.

And thank you guys, all of you, for continuing to be unsanitized (that sounds gross, but you know what I mean).

Like Annie, I like having the freedom to choose to delve into your truths at times that I don't feel too vulnerable, and shield myself (and eat cheese biscuits in a blissfully unaware way...) at times that I'm not ready for stories like that.

It sounds like Ayun has written a terrific book, but I think she's wrong about two things: cribs aren't child abuse (in our case, it would be abusive to make a child sleep with ME) and posting delicate pictures online in places where people CHOOSE to view them is nothing short of a gift.

Posted by: Erica at Aug 21, 2006 1:29:00 PM

Going through my first pregnancy, I immediately sought out information and was drawn to blogs like "a little pregnant". I never imagined that there were so many variables that could happen, and how little control that I, as a mother, would have over my developing child. The breadth of experiences that I've read about, not only on this blog, but also on various other "pregnancy" blogs, has really put things in perspective for me, and I'm really glad that so many women are unwilling to censor their experiences. I'm 28 weeks now, and she (yes, she) is growing fast, moving a lot, and is healthy, as far as anyone knows. In the beginning there were some scary moments, but nothing really worth censoring. Some scanty bleeding and a subchorionic bleed are not usually cause for much alarm. Now my Dr. is worried about gestational diabetes and preeclampsia, and my nerves are nearly shot again. These are things that so many women go through; censoring these experiences during any type of discussion would be doing no one any amount of good.

Posted by: Sarah Hanviriyapunt at Aug 21, 2006 1:34:39 PM

I shield the truth - especially from close family. I did not tell many people - friends and family - about the pre-term labor that started at 31 weeks and continued for 6 1/2 weeks. I did not tell anyone about my episiotomy that was needed to vacuum him out when they lost heartbeat or about the difficult birth and the fact that my son was born blue and needed a NICU team to get him breathing. I did not discuss his food allergies during his first year and GI issues. Now, when the food allergies have come back with a vengance and I am feeling exhausted and tired, I have started to let on as to how difficult the birth was, and the fact that my son's high pain threshold does not help diagnose a pain or problem until it is time to see a specialist. I still do not let on much, but I am always ready to discuss difficult birth, food allergies and any other problems, with other parents whom I meet. And I tell them the truth like it is. I feel like they have a right to know that all may look well, and we take everything in stride, but there is always a challenge that you never expected. Then again, some parents are lucky and have idea that a sleepless night because of something as normal as colic that will possibly go away with time...

Posted by: Sandy at Aug 21, 2006 3:01:13 PM

I tend to be candid, even with acquaintances, about those sorts of details. Why should only the people with unexceptional stories get to tell them? There's no shame in infertility, in medical woes, in prematurity, in star-crossed lactation, in developmental delays. Why not be open about these things so that people's definition of "normal" is expanded to cover a broader range of experience? (Damn, I ought to blog about this myself.)

People (pregnant women or otherwise) will worry if they're going to worry. But hearing about the things that have gone wrong for others should serve to educate them, increase their level of sensitivity (they shouldn't assume that every birth goes swimmingly, or that every woman with a toddler is able to have another baby), and better prepare them to deal with similar complications in their own lives or among their acquaintances.

Posted by: Orange at Aug 21, 2006 4:12:20 PM

At some point almost all of us with the "horror" stories were that same uninformed pregnant woman who desperately tried to deny that anything bad could happen to THEM. I know I refused to read the scary chapters in my pregnancy books... and I really, REALLY wish I HAD. I would have been much more prepared -practically and emotionally- for what happened.

I didn't need to be protected, I needed to be informed.

Our entire society massages the concept of pregnancy until we think that perfection is normal, that real life will end perfectly.

Real life is rarely, if ever, perfect.

That expectation of perfection and the attitude of entitlement to only happy endings is more harmful than honest, useful, real information would be, IMHO.

Posted by: Momness at Aug 21, 2006 4:21:14 PM

I don't hide the unpretty truths about infertility, racism, adoption, and pregnancy complications in my posts. I don't think there's any need to sugar-coat those things since the people who don't want to educate themselves aren't going to seek out information about those issues anyway.

However, with regard to the unpretty truths about pregnancy, delivery, and birth -- as Callistawolf said -- I think it's different for those of us whose children did not survive and have the "happy endings" that you and Ayun have. Even though I shared the story about my pregnancy crisis and my son's birth on my blog, I didn't go into that much detail about labor and delivery and what we went through in those hours knowing that even if he didn't die during labor, the hospital staff would not do anything to resuscitate him. Or about the nuts and bolts of what logistical things you have to consider or take care of when your kid dies. Also, I have never shared his pictures with anyone other than a handful of friends from my bereavement group -- they're just too too personal and even after almost two years I'm not in a place where I could handle an insensitive reaction. So I suppose I mostly hide the unpretty truths because I'm shielding myself from my readers' reactions, not shielding my readers from the truths, if that makes sense.

Posted by: Kay/Hanazono at Aug 21, 2006 4:51:37 PM

I didn't shield the truth about incompetent cervix on my blog. It was my pregnancy story and I was VERY lucky it began with "At 20 weeks my routine ultrasound revealed..." and didn't begin with "At 20 weeks 2 days I lost my baby." Because that was the reality. I was days away from losing him.

I don't offer up my story to pregnant women. But if they ask about my pregnancy, I reveal the 16 weeks of bedrest, the hospital stays, the surgery -- but not the horrid dread I had every day of losing this child. Some stuff is still too much to share.

But I always tell them my story with the caveat, "But don't worry, this only happens in less than 2% of pregnancies" and watch their faces relax a bit.

Posted by: SprengBlingBling at Aug 21, 2006 5:05:44 PM

Very good topic! I have been known to pretty up my truths ... while I won't hide the fact that my shatered NICU dream had a very unhappy ending - I don't often share the intense heartache DH and I went through moments before that ending.

My problem lies in that no one else with my condition ever posted an unhappy ending. It just wasn't a possibility in my mind and up until the end I still believed it was all going to work out. When I came back to the net and people on the message board I went to were asking how things were I was too scared to tell them that it all came crashing down. I would post warnings upon warnings worried that I would scare one or more of them into thinking it could and would happen to them.

Tertia helped me a great deal afterwards. Not directly, mind you, but through her blog. I connected with her on so many levels and admired her grace and ability to just keep shit together - something I felt I was failing miserably at.

I see such beauty in those NICU pictures. I see strong babies who were so lucky to have made it through it all. My only NICU pictures are very dark Polaroids my son's nurse took of him ... all of the rest are after he had died. I did post a picture of him ... just to show people that he did exists and that there is a huge part of my heart now gone with him. I didn't post it for all to see - but only for those who wanted to could. Others had happened upon the picture and let me know how completely morbid and sick in the head I must be to post a picture of my dead son ... but the only thing I could say to them was that they hadn't been in my situation and so they were not allowed to tell me what was acceptable and what was not.

Whoa. Sorry for going on and on. I haven't been able to release some of this stuff in quite a while ... and it's been building up!

Posted by: Michele at Aug 21, 2006 9:53:14 PM

No matter when or how a child comes into this world, I don't think it's possible to consider a baby an unpretty truth. When I saw pictures of Charlie, it didn't intimidate or scare me. It made me realize how amazing the tiniest of the babies can be. They are truly miracles, and what can be more beautiful than that? ;-)

Posted by: Black Belt Mama at Aug 22, 2006 1:33:30 AM

Hiding unpretty truths? Yes and no. My truths at the moment are on my new blog, which I partly created because I couldn't find a single damn thing on the whole internet about normal choromosome variants. I worried for months because all I could find were very scary sites with children with multiple physical and mental disabilities through a chromosome variant. These sites absolutely need to be there, for those children and parents in that situation, but I think my truth, of a chromosome variant with absolutely no health problems and no link to my 3 miscarriages also needs to be out there.

I have been very open about my miscarriages but partly because I have always known about my mum's miscarriages and also was told about wonderful-sister-in-law No.1's miscarriage. Their stories comforted me greatly, so I see no reason or shame in hiding my losses. In Ireland though, an awful lot of people (my in-laws included) are incredibly uncomfortable about talking about anything medical, which makes things difficult sometimes. The pictures of the babies in the NICU don't bother me at all.

However, I am shielding unpretty truths from wonderful-sister-in-law No. 2, who is currently 27 weeks pregnant, after miscarrying her first pregnancy and not telling ANYONE. She is completely freaked out, and was signed off work for 7 or 8 weeks due to stressing about it all. She's having a textbook pregnancy this time and I have turned into a cheerleader(complete with fluffy pompoms) of positivity. She so badly needs that positive thinking and support right now that unpretty truths are on the back burner. If she needs the unpretty info, I'll be there to give it to her, but for now, I'm just shaking those pompoms.

Posted by: Sky at Aug 22, 2006 8:53:16 AM

My babies were in the NICU for a month and then one went on to have other problems. I do remember being careful about showing some people early pictures of the boys, but I think that was more because I couldn't stand to hear remarks that sounded more like pity than congratulations. It was more about protecting me than them. I remember, after they had been home for a while, feeling surprised when I heard via my mother that an aunt had asked why we were showing people photos of the babies hooked up to wires and monitors rather than just skipping forward to their wire-free days. The pics she was referring to were, to me, very cute and not scary at all. I felt kind of insulted, like she should be concerned and happy for us rather than put her own comfort level above all else.
I looked at Ayun's pic that you posted, and it didn't really alarm me. Sad maybe? I don't think so. It's still someone's new baby, and because of that it's beautiful to me.

Posted by: lagiulia at Aug 22, 2006 10:21:31 AM

It's not dishonesty, it's called tact. There are times when I tell people brutal truths, and times when I withhold those remarks. It depends on whether or not I think the people are looking for the truth or not. It's called compassion, and conscientiousness. When I was 20 I thought all tact, politeness, or courtesy were LIES, DAMN LIES, and all that mattered was the truth. Well, I'm 37 now, and I've learned that there are more to the subtle negotiations of relationships and that a little bit of pagentry or performance is not a big fat lie, it is sometimes an act of decency.

Being considerate of other people's capacity or interest in unpleasant facts of life is simply a matter of decency. Some pregnant women want to know about my wife's C-section, about my glimpse over the curtain to see my child being yanked from her belly with a glistening pile of her own innars heaped on her chest, and others just want to know that everything went fine. I have no problem adjusting my recollections to the tastes and temperaments of either.

Posted by: Sean Bosker at Aug 22, 2006 10:35:36 AM

I am pregnant with what will be (hopefully) my first child, due in mid December. Before my current pregnancy, I had a really early m/c somewhere between 6 and 8 weeks in fall of last year. It was more disappointing than traumatic for me, for reasons that the left-brain logical side can easily handle. I concieved easily, and found out I was pregnant very early on. In my case, an 8-week ultrasound simply showed nothing there. No pain, no spotting, and honestly, very little drama. I was in love with the idea of having a baby (and therefore mourned that loss) but not with the baby itself, if it makes sense. Still, having gone through what was in my eyes a minor, temporary setback completely has changed the tone of my current pregnancy. While for 8 weeks last year I was the blissful pregnant optimist, surfing the babies R us website during all my spare hours, this time I have not only been much more realistic (perhaps even pessimistic?) about my pregnancy, but have actually sought out the various successful and even unsuccessful birth stories of many women through pregnancy blogs on the web. I want to hear all of the stories, know all of the what-ifs, understand the many shades of gray between the "perfect birth" and the loss of a child, mother or both. In my eyes, nicu stories and photographs are more inspiring than painful, and the strength of the families that have endured anything less than a storybook birth are enriching to me. I wouldn't want to be shielded from those images or stories, and yet I can understand how some would. My brother, who also wants to begin a family soon, keeps asking me if I'm excited yet. And now, at 24 weeks I am... it just doesn't come across that way. In some ways I think catching a glimpse of the dark side has taken joy out of my own pregnancy. I can't help but look at other blissfully happy first-time pregnant women with jealousy. I just hope that they have the birth stories they always dreamed of, and I will simply wish for myself a happy, healthy child, and if anything happens otherwise, I would consider myself lucky to deal with the experience with anywhere near the grace and love many of you have.

Posted by: Jennifer P at Aug 22, 2006 12:03:05 PM

I bury them, late at night, in the farthest corner of the backyard, somewhere behind the garage. I think most people who know me think that nothing bad has ever happened to me. That's the way I'd like to keep it.

Posted by: uberimma at Aug 22, 2006 10:24:29 PM

Last night while breastfeeding, one of my sons decided to try out his new tooth on me. Eeeeeeow! All I could do was think about this post of Julie's and laugh. If I was dying, this would be the LAST thing I'de request...unless of course the pain would take my mind off my other injuries. Between Ayun's rosey view of breastfeeding, and her worries about ugly NICU truths, I wonder how true to life her book really is. I think I'll keep waiting for Julie to write one, or until Tertia's comes the States.

Also, my babies were born full term and healthy, and I too have majenta and blue striped blankets. The hospital told us to take them home, no stealing required :)

Posted by: Chickenpig at Aug 23, 2006 7:26:41 AM

Chickenpig,
Ayun wrote a whole bleeding chapter about the NICU. I saw it when it was a puppet show on the Lower East Side of New York. She may be a freak, but she's our freak. She must have loved breastfeeding honestly because she did it for more than six years combined. Tertia's book is great. I bet Julie's book would be great. Ayun's book is great and along with hipmama and brain,child kept this mama sane for that hard first year.

Posted by: triscuit at Aug 23, 2006 3:44:22 PM

I don't doubt the NICU stay, I was referring to her fears that the pictures would shock people. I am sure she loves breastfeeding, as do I, some of the time. I just don't think it's that great ALL of the time. I just think that with all books, no matter how autobiographical, contain a lot of editing and fiction. If she was afraid of showing her babies picture, how really open is she about her true feelings regarding motherhood? If she wrote a whole chapter on the NICU, the scary ruth is already out there, so why not show the photo and celebrate it? I guess I'm the dirty guy on the corner shaking a cup too.

Posted by: Chickenpig at Aug 23, 2006 6:41:55 PM

Born at 29 weeks and home one day before our due date, we spent 11 long weeks in the NICU. We have lots of pictures from that time, they are our first family photos, and I treasure them and love to share them frequently with anyone who will sit still to look.

We too have the blue and pink striped hospital blankets and I cannot bring myself to get rid of them more than 2 years later. Most of the preemie outfits have been donated back to the NICU where we spent so much time, but I keep holding onto those blankets for reasons I can't explain.

Posted by: CB Mommy at Aug 23, 2006 10:24:40 PM

I have to admit that I have not shared a lot of the details of the pain that I went through. I (like many others here) have a long a detailed medical history. I joke that I am too young to spend time talking about my health.

I think to a certain extent there is not often the right moment to share these things with others. You don't want to scare someone who is doing fine and comparing wounds is not always helpful to someone with a new pain.

I find that it leaks out in moments here and there. I recently started my own blog to find a place to talk about these things, but hmm, not a lot of it is there yet. The four unsuccessful IVFs, the two pregnancies where twins became just one. You want to be grateful for what you have and looking back can be hard.

I have always loved hearing your honesty. Sometimes I would cringe and my heart would ache. Other times you have made me laugh hard enough to piss my pants.

Posted by: Angela at Aug 24, 2006 3:20:39 AM

It depends. I'm careful with my unpretty truths because I don't want to be regarded as one who wears them on my shirt for all to see, like a badge that says "I'm better because I made it through worse than you."

As a student childbirth educator, I am learning to be more neutral. Give all the information, don't sugar-coat, don't gloss over, but acknowledge that we all want our truths to be pretty and there is nothing wrong with that. You can go through a rough time and be better for it and still wish it were different.

Posted by: Heather C. at Aug 24, 2006 2:00:47 PM

The truth is not always pretty...and that's a fact most parents quickly learn. Should I, as a pediatric nurse, never tell nursing students considering my field that they might one day see a baby struggling for its life? That they might cry as they hold an abused child in their arms? I could tell them about the smiling babies, the happy children, and I do, but you can't go into the world blindfolded.....

...Which is part of why I love your blog so much.

Posted by: Audrey at Aug 24, 2006 6:24:25 PM

"You can go through a rough time and be better for it and still wish it were different."

YES. YES. YES. Amen, sister.

Posted by: Shelley at Aug 24, 2006 9:49:56 PM

Bless all of your hearts who share the truth. As someone without children at this time, I truly appreciate the "real" stories of pregnancy and birth. I frankly think it is a disservice to fellow women for them NOT to know what things can REALLY be like and I've resented women friends who painted candy coating on things I KNEW were not so pretty behind the scenes.

Posted by: at Aug 24, 2006 11:37:19 PM

You are right. People hide their unpretty truths, but they are just as valuable to the world as the pretty truths that are on display. For every unpretty truth you have, someone, somewhere in the world is experiencing the same unprettiness, and sharing it makes it something beautiful that can help others in a miraculous way. Its like shining a light in a dark room. We all need to learn to be brave enough to share our unpretty truths in the hopes of lighting the path for others.

Posted by: Kyla at Aug 25, 2006 11:36:08 AM

Great question. Like Suz, I did not take many pictures in the NICU of my 27weeker twin boys and now I regret it. I did not sugar-coat our NICU experience in my blog because it was the real deal, where I came for comfort and for my own need to be supported and listened. Whoever finds our NICU chapter disturbing is welcome to skip the reading and/or move on the next blog for "happier" reading.

That being said, we did sugar-coat the truth my elderly great-grandparents who would h